Moms, Regulators, Biotech Startups, and the Battle Over a Potentially Life-Saving Drug – Businessweek
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“The 2014 World Cup elevated soccer to the top of Aidan Leffler’s roster of obsessions, rivaled only by endangered big cats—especially jaguars, “the coolest”—and Star Wars spaceships. In recognition of his new interest, he’s set up a miniature soccer field with 4-foot-wide goals in his backyard in suburban Bellevue, Wash. “Watch this!” he shouts, preparing to fire a penalty kick.
Small for his age, Aidan, 11, moves awkwardly, shoulders high and hunched. He uses a lightweight plastic beach ball, not a regulation leather soccer ball. He begins his approach, pulls back his right foot, and … collapses to the grass.
Mitch Leffler, the sole spectator, moves toward his son. “I’m OK,” Aidan says. “I can do it.” He struggles onto his hands and knees, raises his butt, places his hands one at a time on his thighs, and slowly pushes himself into an upright position. “My leg just wasn’t there,” he says matter-of-factly. His father nods, and the game resumes.
Aidan has Duchenne, the deadliest strain of muscular dystrophy…”
From – Businessweek